Yesterday I had the pleasure of going into the doctor for a terrible weekend of side effects. They drew blood, took all sorts of samples, then sent me right up to the chemo room for IV fluids. They found out I was dehydrated and my potassium levels were lower than they should be. I had lost a lot of potassium since the prior lab test just a few days ago. So I spent the next 3 hours or so in the room getting IV fluids and medical staff asking loads of questions.
They put me back onto high dose steroids as theyve pretty much decided its my immune system attacking my own body. None of the over the counter medicines they had me try worked, so that typically means its my own body causing the damage. (my labs will come back today or wednesday to verify this). So steroids my nightmare. I was up like clockwork again last night unable to sleep. Same story different time. But hey, I cant have my body attempting to eat/ wipe itself out.
As of this morning (Ive been up since 2) Im still not feeling great or able to keep anything down. Only thing Ive somewhat managed to keep down is the doctor prescribed gatorade, to help the potassium issue). The nurses told me I had to eat. I told them the key to not getting sick is to stop eating. They really didn't appreciate that answer very much.
We go back to the doc today for lab work. Then tomorrow is my normally scheduled lab work, doc appt, and Yervoy infusion. Eric and I are hoping they dont cancel the infusion. They can cancel it if they think the side effects are already doing too much. I can tell already that the steriods are starting to make me feel less crappy than before, so hopefully this will be enough to keep on going. We really want to be able to get all four doses of Yervoy in. It really has shown to have some good benefits if I can complete all 4 rounds. (longer life expectancy and such)
So here we are...trying to guzzle fluids, curled up on the couch watching my favorite crappy tv shows :)
On a fun note Elliot found the door stops today. Hes been trying to get to them and make them go 'BOING!!!!' hes been grabbing a toy, going over and whacking the toy on the stop. This will be just one more thing to keep him away from. YAY.
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