August 11, 2013

My own update.

Ive been taking it easy. My head is ravaged from the radiation. My scalp is burned, hairless, red and just looks like a terrible sunburn. Anything touching it hurts. Literally a pillow or silk scarf hurts. I cannot describe the pain. The nurse made me some special lotion to help with the pain, but so far it doesnt do much. (unless making my head really shinny count? I swear it might just be turtle wax). Along with that Ive got some pretty bad pressure in my eyes. Makes my vision screwy, and eyes watery all of the time. Its just easier to keep them closed. My appetite is gone. No idea why. The steroids are supposed to make me hungry, but are not doing it. If I didnt force myself to eat something during the day I wouldn't eat at all, and yes Ive lost weight due to it. My body just hasnt been telling me Im hungry, no hunger pains nothing. I do eat, though. I eat so that meds dont screw up my tummy more. (last time they gave me ulcers) Other than that and the random insomnia Im doing okay.

I have a whopping 2 radiation treatments left. Then we wait. I have scans on September 3rd, and meet the doc September 4th for the news. This is a huge appointment. It will tell us what the radiation did or didnt do, and ultimately give us more of a timeline as to what we are looking at. I know only God knows our time etc, but they can get pretty dang close. I just dont have that many more options left. Chemo isnt an option, Ive maxed out radiation so thats done, and Im too bad off for clinical trials. So we are at a waiting game. Im anxious to hear and see what the doctor says.

Ive had some fun this week! My mom took me for a pedicure. (this is only my 2nd pedi ever from a professional) I decided that since I dont do it often to get a crazy color so we went with Green! Bright green toes! For some reason this makes me happy. We also had lunch, and 2 dinners with my parents. Its nice to just get out, without really being out too much. My multiple naps, and early bed time tends to get in the way of being 'social'. That, and I think it goes back to them getting me to eat more. :) Overall, its been a good week. Stayed close to home, and tried to rest. I think thats our plan for a lazy sunday as well....


No comments:

Post a Comment