March 9, 2014

"The Plan" (well what we know right now)

Ok its been a busy few days. To recap everything ….
1. The tumors in  my brain, in my fluid around my brain all shrank or stayed stable.  With the original count of 9+ tumors that is a HUGE deal!!! Woo hoo!!!

2. Found a new tumor on my left tibia. (right under by knee) This was a shock because I have no pain from it.

3. Found a new tumor in my small intestine. Rather large and possibly already growing into a cluster of bowels. (glamorous sounding right)? This one I expected. This was why hospice wanted scans done. Ive been having tummy pain for weeks now.

4. Due to good brain scan, and new findings Im off hospice and back into the care of my oncologist. (Hospice only takes/keeps patients if there is no further treatment that can be done. OR if a patient refuses treatment and is not seeking a cure) Well we have treatment options for my tummy and leg. So we are TAKING IT! So far there isn't anything we can do for my brain, but it seems to be fighting on its own. So we broke up with hospice so to speak! This is a great thing. The fight continues!

Whats our next step? We met with my Radiologist Oncologist friday. We are in for 15 rounds of radiation to my tummy, and 20 rounds to my leg. I go in Monday to have my CT scan done with the lasers. (what I call them) and get me all lined up on the table. (if you've read earlier posts I put a pic of my 'mask' for radiation they will do the similar just lower) The doctor said he will for sure be able to get most of it, but he cannot guarantee all. Remember Im just buying as much time as I can. My brain, brain fluid, spinal fluid are all heavily involved with cancer.

To sum it up we are doing good. We have a new plan. Heck, just a few months ago I was told I wouldn't see christmas. Now Im back to looking at treatment plans. We get to reevaluate everything. My Docs are also looking at chemo or other similar options for after radiation. Now that Ive shown improvement in the brain I may qualify for a study or trial. We won't know for a while.

I have many side effects but overall we are doing good. This is wonderful news.

1 comment:

  1. Cassie, I'm elated!!! God is in control and knows all things!! We are all praying for you and will not stop. I love your Granny so much and I know she is happy right now about the good news. Love, Gayle

    ReplyDelete