The new plan

Another day another challenge. We saw the oncologist yesterday. Right now our plans are to talk to my Radiation oncologist and start radiation on my left tibia the first week of April. We then have a follow up appointment with my tummy doc to get the all healed all clear. If we get the all clear we are going to start a new new new drug just approved that is supposed to help knock out blood supply to cancer cells.

This come in pill form so I would have the therapy at home. Unlike chemo. If you remember the last pill therapy up me thru hell. Yes, I said HELL. Read back.. I had every side effect. I refuse to go through that again. This time we stop immediately if it starts to get really bad. This new drug can't make the cancer worse, it can only either do nothing, or cause it to get better. We agreed to try it because we have no other options other than not try. Like Ive said many times before, Im not quitting. We are in it for the long game. Terminal or no….This is not taking me easy. Im taking it with me. (as if in battle).

I will admit Im scared. Im scared of more pain. Im recovering from surgery in pain, unable to hold my son for the next few weeks, and this is the time Im relying on the strength of others. My family and friends. The idea of more pain up the road is very hard for me to be excited about. Then there is my family. Right there with me. Every step of the way.They are the only reason I can stay sane and focused these days.

My aunt stepped in yesterday to help watch little one. He is quite the little boy. Run run run. In those few hours I think he wore her out. I know he runs us ragged, someone he doesn't see daily?? yeah buddy, he's ready to play. I love that I have the family local that we can use in times off need. Thank you Aunt D! for watching Elliot again! He was soooo tired he even slept in.

Ill update you all again soon. As of now Im healing more and more daily. Its just a matter of eating more right now. I still just don't have the appetite I need.