Nurse Check in Day!

Tuesdays are always interesting. That is the day where my hospice workers come and visit. Check vitals, meds, all the good stuff. We are still fighting the no pain fight. I have headaches daily that we are still trying to get under control. Basically, I have built up a tolerance to the pain meds so they just are not working like they used to. We are trying new stuff to get me back to a good level. Im okay as long as the noise level stays low, and not a lot of stimulation goes on. If Im out in public too long, or things get loud Im done for. Back home to the quiet fortress! (Elliot tends to be on the quiet side so he's good) That said they are getting together (hospice team) and calling me back tomorrow morning with my new script. Hopefully it will get me back to no pain.

I have the pain behind my eyes all along my forehead. Its a deep pressure, that sometimes spikes red hot. I also see white spots in my vision. (fun stuff!) My balance is okay, and my strength seems steady. I have been able to walk without a cane for a week or so. So it seems my walking has improved for now. Its always a day by day basis. Other than the pain, and eye stuff I feel pretty good.

They upped my steroids last week to help the pain. My face has already blown backup to steroid face, and I gained 5 lbs. Woo hook for the munchies. I really hate the steroids. They don't allow me to sleep, blow up my face, and give me weird eating habits. One week Ill gain, the next not be hungry and loose too much. Add that to the muscle loss that will follow and Ill be back to a weakling before too long. The steroids really do just eat away the muscles in my legs. Im trying to stay up and moving to keep my strength up.

With the extra energy I have lately, I managed to organize every cabinet, and closet in the house. Its like spring cleaning! I literally have nothing left to organize or clean. (well unless the garage counts, but its below zero out there ) Id tackle the garage if it was a tad warmer, if my hubby would let me…haha.

For now I plan on trying to take it easy. Maybe get the family out to the museum this week. Chek our the new paintings they just got. (I have yet to even visit since they opened) I thought it might be a fun experience….19 month old in an art museum who am I kidding???