So Ive spoken about this new medicine Im on. I finally decided its time to post a bit more about it. Its name is Zelboraf. Its a immune boosting drug, not chemo but chemo-sih is what I call it. (if you read the side effects you would too.) The goal is to maybe help shrink my tumors with it. Its a long shot for anything to get into the brain, but we are trying none the less. Im not holding my breath on this, but we said we would try everything. Keep in mind crossing the blood brain barrier is very very very very hard to do. This is just being used to try to busy us any extra time we can get. The likely hood of this doing anything is tiny.
I take 4 horse pills 2x daily at home for this treatment. The label is pretty scary. It basically doesnt want anyone to touch it but the patient, and is very strict on when to take it daily. Not sure how long I will be at this does, but I dont expect it to change anytime soon.
The side effects just plain suck. So far Ive only been on it a week. They check my blood weekly, along with doctors visits to see how Im doing. Right now my side effects are as follows-
- Severe sun irritation. I have burns on my neck, lips, and chest from a car ride not covered up well enough. I feel like a vampire in the sun. I can feel my skin burning even thur a window. All I need is the fun smoky vampire effect. 'Im melting...hahah'
- Fatigue - granted I always have this just seems more extreme.
- And todays newest- Joint pain! I woke up feeling 80 yrs old with arthritis. I could hardly walk my joints hurt so bad.
Now for the possible side effects I dont currently have. OR I do and have already have and dont realize its making worse. lol. What a disclaimer.
-may cause skin cancer (ha)
-feel faint
-trouble breathing/ swallowing
-faster hear beat
-skin reactions
-joint pain
-hair loss or hair growth?? lol. I loved this one. Granted I have no hair already. Maybe Ill grow some?
-fatigue
-nausea
-rash
-constipation
-diarrhea
-sun sensitivity with blistering
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