Check Up Day

Loads of new news today. (well sorta) We decided collectively to stop radiation on my spine today. So far the radiation did what it was supposed to do. My arm is no longer going numb, and no longer in pain. SCORE! We originally had 5 more treatments to go after today, but decided to stop. The pain is gone, and all its now doing is causing my throat pain with difficulty eating. There is no added perk to continuing the radiation. At this point its more harm than good. So we are stopping. 

We also had a checkup with my oncologist today. It was to see how Im tolerating this new 'chemo' drug. My labs look good, and everything else is normal on that front. The only side effects right now is the severe burning with sun exposure. Any amount of sun causes severe blistering. This is normal for this drug. Yay me. For now I get the pleasure of staying completely covered from the sun. Guess it could be worse. 

Ive been having severe pains in my head the past few days. They are treating me with a new med today to try to keep that under control. They also are keeping my steroids up, rather than decrease like we had discussed. As of now Im still on track for a MRI next week to see how my brain is doing. At that time they will recheck all blood levels etc.

So for now we watch and wait. No more radiation, just taking the new drug, and will seed how I do. Stinks that we are in a holding pattern, but there isnt anything else we can do right now. So loads of rest for me, and staying indoors. I seriously feel like a vampire if I go outside (and not the sparkly kind) I can feel my skin burning. Its a crazy feeling.