I woke up and said "ENPUGH!" I as plain tired of my lips hurting/ and mouth hurting so bad I couldnt sleep or eat. So I called the doctor. They sent me asap to an ENT to be checked out. The ENT prescribed a bunch of meds to help heal everything, which was an almost immediate relief. Im not sure why I didnt just yell sooner.
I havent been eating or drinking lately either. So on my 'enough' call my oncologist sent me for IV fluids with loads of vitamins in them as I was dehydrated. They aslo demanded i come in daily for the next 5 days for the same treatment. I tell you what, 2 hours of IV fluids makes a HUGE difference in how a person feels. Im already felling a ton better. Not nearly as sleepy. I was falling asleep mid conversations etc. I also managed to get 8 hours of uninterrupted sleep last night! Means that medicine is really staring to wear off. Im finally seeing the light at the end of the tunnel for getting this out of my system and back to recovery.
Im still very very weak, and need lots of help to get around. We had to use my new wheelchair yesterday to get around. It really was handy and worked well. My legs just dont work due to the steroids and Zelberoft. This should slowly resolve itself a bit. Ill alsways be weak due to the tumors, just shouldnt be this weak.
They had to push my new scans to later this week due to my blood sugar being low. I should have a new set of scans done Thursday to see how the tumors reacted to the meds. We will know at that time if we need to continue the meds, or stop and try something else. So that is where we stand. Prayers are appreciated, as we have some big things ahead of us these next few days. Staying positive enough can grind on a person when you cant eat or drink anything. (Add that to staring at your favorite M&M's staring at you that you cant eat.....torture!!!!) :)
Cassie, just wanted to say hello this morning and say I love you very much. and Bill and I pray for you every morning and all through the day. Jesus loves you Love Granny Bell & Grandpa Bill
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