Lots of Questions

Today was my 6 week follow up from my lung surgery. I went in knowing that I was getting a chest x-ray, and a talk with the doctor. My mom took me in so Eric could go to work. So off I went to chest x-ray. While they were reading the scans I thought they looked a bit off. They took us back to an exam room, where suddenly my oncologist appears. He asks me to step outside and look at my chest x-ray with him. (this is odd)... come to find out the x-ray did indeed look odd. There were markers there that were not on my last chest x-ray. He proceeded to explain that the chest surgeon thought my xray also looked odd, and that we needed an immediate CT scan. My doctor explained that it could be cancer, inflammation, or an infection causing the odd x-ray, but that the ct would help discover the issue. At this time he also advises me to call my husband and get him up here ASAP.

So I called and freaked my husband out. This is his worst nightmare. I get rushed off to the lab for blood work, and a CT. After the scan we get put into another exam room to wait. At this time we are worried. I had not thought that it would happen this quickly, my next Pet scan is 3 weeks away. I had time to worry etc.

The doctor finally came into the room. He explained that the CT looked okay, as the radiologist said it appeared to look like normal post op healing with some inflammation. Nothing to worry about. My first question was "well if its normal why didnt the chest surgeon see that on the X-ray?" The room went silent. It seemed as if we had stumped the doc. I think its a valid question myself. He never responded to it. Basically we got the run around that there are more spots in my right lung, but no official reason as to why. Ive had 2 other post op xrays, and those didnt have any red flags. Why this one? So now we have the hurry up and wait response. Wait a few more weeks until a pet scan. Meanwhile, my doc said I should rest easy tonight. I told him "nope, now I get to worry. Nothing here is conclusive." Its the truth, we got no answers today. All we got was unnecessary worry. I never even got to see the chest surgeon!!! He never came into my room, or even got to talking to me about how Im doing post op.

I feel as if the medical staff abandoned me, simply because they didnt have an answer. They would rather me wait until next month for a pet scan than conclude as to anything right now. Its very early for the tumors to be growing back if that is indeed the case. The whole situation is odd. So instead of good news we got EHHH news. Back to hurrying up to wait. We have so many questions now.

We did get told that they had a meeting tonight with the chest clinic and all the oncologists in the practice. They would be reviewing my case again, and looking at todays scans. I dont see how this is going to help. Maybe someone will notice something different. Maybe someone will have an opinion. Im not holding my breath on a phone call. I just have to wait until next month for my scans. Then we can move forward again.