So I had a visit with my oncologist yesterday. I am officially in Remission!!! As of right now there is 'NED' or no evidence of disease. The sound of that brings tears to my eyes. As of right now our plan is to watch and wait. My next set of scans is in July. We will continue to have scans every 3 months to check for any cancer. If it pops back up we still have some avenues we can go (different chemos etc). So as of right now Im good to just live my life as normally as possible.
At the visit he also checked my surgical site, and everything is good. I mentioned my numbness in my fingers and hand, and my pain. He finally told me what likely caused it. Apparently I have a bruised nerve thats causing the numbness. He prescribed a nerve pain drug, that has worked wonders! It helps healing and pain. I slept for the first time all night last night, without pain! The nerve medicine will also help my back and chest pain, as the pain is due to the nerves cut in surgery. Im so happy that finally we have an answer to my pain issue! The only trick is I cant take it during the day, as it makes me drowsy. But hey, pain relief at night is something Ill take! I cannot tell you how good it felt to sleep last night.
Since my case is unusual (most people with stage 4 cancer in the brain dont live very long) we dont know what the chance is for the cancer to return. Normally the percentage is 100% rate of return. We have already established my case isnt 'normal' so that statistic doesn't apply to me. So for now? We just live our life, recover from surgery and watch/wait.
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