September 6, 2014

Lots of sleep and cookies...

The doctors continue to be amazed at how Cassandra has recovered from what seemed like the end only a week ago. We are still lowering her pain meds by increasing the frequency and decreasing the quantity. We are aiming to get her home on either Monday or Tuesday. All of this is contingent on her continuing to do well and the spikes of pain to become less frequent.

Cassandra still has pain as her medical condition has not improved any. That is to say she still has terminal cancer in the lining of her brain. The drugs that Cassandra used in the past, Immunotherapy, still have a chance of fighting the cancer. Also, we are chasing down any leads on any new drugs as they become available. One drug, Keytruda, was just approved by the FDA. It seems perfect for Cassandra but some more research needs to be done to see if she is a viable candidate for it.

Cassandra continues to do well in every way imaginable. Most of our time is spent eating cookies, watching TV and catching up on sleep. Also, many discussions on which skittles candy is the best and the merits of each one. Overwhelming support for the red and orange skittles while yellow is much loathed.

Our family is still blown away by all the support we have received. We cannot thank you all enough for your donations and words of support.

Eric

1 comment:

  1. Eric some info for you. Kathleen.Maloney-Lurz@mountsinai.org or call 212-241-6252. Also for clinical trials call John Percival Pena NP at 212-241-6252. Top facility in the country for Cassandra's condition

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