Been a while….

I didn't realize that I've neglected my blogging duties. Ive still been not feeling great and mainly staying in bed. I haven't even been doing as much housework as I normally so. Ill admit Im pretty anal about how I keep my house. Lately Ive just loosened the reigns and just let it go. That said, I did have a good weekend.

Saturday morning we had a 'Mad Housewives Tea' 9 of my friends and family (women only) got together and had tea. It was on my wish list to have a fun frilly tea party. We had tea sandwiches, pretty teat pots, and tea cult, and even social tea. Its safe to say we all had a blast. We all love the men in our lives but this was a chance for us to have a couple hours to ourselves and be kid free for a bit. I wish I had taken a picture of the table, but here was the menu

Blueberry scones
vanilla scones
fruit skewers
cucumber sandwich
chicken salad sandwich
turkey and cheese sandwich
and then an assortment of deserts.

For teas we had a huge selection as well. My new favorite is "chocolate scone". It is as rich as a mocha, with none of the milk, sugar, or calories.

The tea party wiped me out. I got home around 2, and was woken up at 8. My husband said he thought I needed to sleep so just let me sleep. Thats how it is these days. After either an outing or event I go home and crash. So while its good when I get get out, the results are me sleeping for a looong time. Sometimes I feel like sleeping beauty. I feel like Im starting to sleep more than stay awake.

My eyes have gotten worse. I really struggle to see. Everything is blurry, and I frequently loose sight entirely out of my right eye. It makes it hard to blog or write. Ive also started been unsteady on my feet. My legs are getting weaker again. We just weaned off the steroids so my strength should go back up.

Ive been dealing with more and more splitting headaches latterly. All I do is put my cool mask on, and lay down with my eyes closed. Its the only way to make the pain go away. Food is back to being just ehh. Im rarely hungry anymore. So all that steroid weight is coming back off. Ill admit I gained 20lbs when they added the steroids. Im down a bit but working on dropping more.

So the good news is we got approval to get full body scans done!!!! They normally don't do this when a patient is on hospice. So Im special. We have some new symptoms that don't exactly mix. They want to find out whats going on in my tummy. They think it may be a tumor, I had one in my tummy before but the yervoy made it disappear. They are afraid that has come back, All I want to know is whats going on in three!!!! has my brain gotten better'? worse? whats the timeline look now??? So thats whats going on with me. I see the doctor and nurse tomorrow. We are going to set up scan dates and times at that time. They also want to run another urine test. To double check the last one?? I dont know… So until tomorrow…

Im gonna take another nap.